Qualitative Study on Customer Experience in Wheelchair Provision Process: Preliminary Findings for Developing an Mobile App for Consumers to Navigate the Wheelchair Provision Process
Hsin-yi Tanya Liu1, Theresa M. Crytzer1, Annmarie Kelleher1, Jennifer Wolff2 and Dan Ding1
1Department of Rehabilitation Science and Technology, University of Pittsburgh
2UsersFirst, United Spinal Association
ABSTRACT
Our research team is collaborating with UsersFirst to develop a smartphone app to guide consumers through the wheelchair service delivery process. In order to include appropriate and necessary information in the app, we conducted an interview study to collect suggestions and expectations from wheelchair users on how a smartphone app can help them to go through the wheelchair provision process smoothly.
INTRODUCTION
The wheelchair provision process plays an important role to ensure the fit and quality of a wheelchair for people with disabilities. The Rehabilitation Engineering & Assistive Technology Society of North America (RESNA) published a wheelchair service provision guide that recommends the essential steps in the wheelchair service delivery process (Arledge et al., 2011), and various sources stress that the consumer of a wheelchair should play the center role in the wheelchair service delivery process (Arledge, et al., 2011; Eggers et al., 2009). However, the process can be overwhelming for consumers, and a lack of information on the service delivery process and mobility devices were noted as issues (Evans, Frank, Neophytou, & De Souza, 2007; Greer, Brasure, & Wilt, 2012; Jedeloo, Witte, Linssen, & Schrijvers, 2002) . To provide a guide specifically for wheelchair users, UsersFirst, an advocacy group for wheelchair users, developed a Mobility Map, which is a web-based tool that provides comprehensive and detailed steps for consumers to obtain a wheelchair (UsersFirst). However, its portability is limited by the need of using a web browser. Our research team is collaborating with UserFirst to develop a smartphone app to guide consumers through the wheelchair service delivery process. Our aim is to empower and prepare wheelchair users to get through the wheelchair service delivery process by providing timely and step-by-step checklists in conjunction with educational information through the smartphone app. In order to include appropriate and necessary information in the app, we conducted an interview study to collect suggestions and expectations from wheelchair users on how a smartphone app can help them to go through the wheelchair provision process smoothly. This paper is to present a short summary of the findings.
METHODS
The study protocol was reviewed and approved by the Institutional Review Board of the University of Pittsburgh (Pitt IRB), including a waiver to document informed consent. Recruitment was conducted through clinicians at the Center for Assistive Technology (CAT) of the University of Pittsburgh Medical Center (UPMC), and Facebook after we obtained approval from the page owner. Potential participants were provided with a flyer and if interested, he or she contacted the investigators. An investigator followed an approved script to conduct the informed consent process and participants provided verbal consent. The inclusion criteria were: participant was 1) older than 18 years old, 2) a wheelchair user, 3) using his/her wheelchair independently, and 4) using his/her wheelchair as their primary means of daily mobility. The eligible participant was provided with the option to participate in 1) a group interview with other wheelchair users, 2) a one-on-one interview in person, or 3) a one-on-one phone interview.
Prior to the scheduled interview, the participants completed a demographic questionnaire that included his or her history of using mobility devices. The first part of the interview was about the experience during the wheelchair provision process. The second part of the interview was about participants' suggestions and expectations for a smartphone app to help with or facilitate the wheelchair provision process. The investigator explained the purpose and features of the app. Participants then answered a short survey about whether they felt a smartphone app would be helpful. Suggestions and expectations were gathered through an interview using the questions presented in Table 1. Using a guided interview process, participants were prompted to elaborate on each question.
Survey Questions |
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Guiding Questions |
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The interviews were audio-recorded and transcribed into typed manuscripts. Descriptive analysis was applied to evaluate the results from the demographic survey and the short survey. Participants' suggestions and expectations about the smartphone app were summarized in the result section.
RESULT
Fifteen wheelchair users participated in the interview study. Table 2 shows participant demographics. Participants’ answers to the short survey were shown in Table 3. Participants’ suggestions included ideas to facilitate the wheelchair provision process and app features for novice wheelchair users, (e.g., health management and wheelchair funding information, a wheelchair usage tracker, and a tool to facilitate connections with wheelchair seating professionals and wheelchair users. The suggestions were categorized and shown in Table 4.
Demographic Variable | % (Counts) or Mean ± SD | ||
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Age (years old) | 37.3±13.1 | ||
Gender: female | 33% (5) | ||
Years after diagnosis | 22.2±13.8 | ||
Diagnosis | |||
Spinal Cord Injury | -Cervical | (5) | |
-Thoracic | (1) | ||
-Lumbar | (2) | ||
Cerebral Palsy | (4) | ||
Muscular Atrophy | (1) | ||
Delayed Progressive Radiation Myelopathy | (1) | ||
Spinal Bifida | (1) | ||
Years of experience using a wheelchair | 15.7±11.6 | ||
Power Wheelchair Users | 73% (11) | ||
Smartphone Users | 87% (13) | ||
Age of current wheelchair (years) | 2.8±2.1 |
Option | % (Counts) |
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App helpful for you? | |
Very helpful | 7% (1) |
Helpful | 47% (7) |
Slightly helpful | 27% (4) |
Not helpful | 20% (3) |
App helpful for other wheelchair users? | |
Very helpful | 33% (5) |
Helpful | 67% (10) |
Slightly helpful | 0% (0) |
Not helpful | 0% (0) |
What reviews would you provide online? | |
Mobility Device | 93% (14) |
Wheelchair seating clinic | 73% (11) |
Supplier | 93% (14) |
Willing to share some of your demographics with the review? | |
Yes | 100% (15) |
Information: a guide for the wheelchair provision process (Mentioned by 5 participants) |
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Information: funding processes (Mentioned by 6 participants) |
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Information: database (Mentioned by 8 participants) |
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Information: living with SCI (Mentioned by 2 participants) |
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Information: wheelchair selection and setup (Mentioned by 5 participants)
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Information: wheelchair usage (Mentioned by 4 participants) |
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Provide a communication portal (Mentioned by 6 participants) |
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Track wheelchair maintenance (Mentioned by 3 participants) |
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Allow users to leave reviews about wheelchairs, cushions, parts, and suppliers (Mentioned by 3 participants) | |
Track activity level or stroke number for manual wheelchair users (Mentioned by 1 participant) | |
Facilitate supplier service (Mentioned by 3 participants) |
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User interface requirement (Mentioned by 4 participants) |
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Should collaborate with clinics, therapists, or supplier to promote the app (Mentioned by 2 participants) |
DISCUSSION
According to our participants, providing related information and facilitating communication with the supplier, physician, and therapist are important app features to help individuals go through the wheelchair provision process. A lot of information about the wheelchair provision process can be found online, but the individuals have to collect information from several websites without knowing about the credibility of the sources and the quality of the information. Our research team is working with the clincians from the UsersFirst group to reorganize the information and design the layout of the app to enhance the portability and usability of the materials. Besides the features that would directly help users to go through the wheelchair provision process, several suggestions were about providing information to empower users to proactively manage health, independently and safely use wheelchairs, and make informed decisions concerning wheelchair selection. Currently we are planning to develop an app to provide related information and allow the user to track the progress of the service delivery process independently. In addition, associate apps are also being developed to provide information about wheelchair selection and setup, wheelchair usage, wheelchair maintenance plus a reminder function to notify the user of to-do tasks, and allow users to share their comments about wheelchairs. Figure 1 and Figure 2 are the mock-up app pages that we are currently developing. The app design and development will be described in detail in our future publication. Participants also felt that the databases of wheelchairs, wheelchair seating professionals, and support groups would be helpful, and a communication portal can further facilitate the process to be more client-friendly. These two features are not included in this app development project because they will require significant efforts to collect and organize the information, maintain the database and data transfer, and manage collaboration among every stakeholder in the wheelchair provision process. Participants also suggested features to facilitate communication with suppliers and detect the performance or problems of a wheelchair. These features can be potential features in future app development.
REFERENCE
UsersFirst. Mobility Map Retrieved Nov 19, 2014, from http://www.usersfirst.org/resources/mobilitymap/index.php?pg=kb.page&id=1524
ACKKNOWLEDGEMENT
This project is supported by the National Institute of Disability and Rehabilitation Research (NIDRR): Disability and Rehabilitation Research Project (DRRP) (grant # H133A130025).